Tag Archives: sensory issues

Change is good. Days 11 & 12

30 days of thankfulnessIt is safe to say that I am not a fan of change. (Really though, do you know anybody who is??) I like to know “the plan”. I like when things go according that plan.

Now, that is not to say that I can’t roll with change when it happens, because I can, and do, on a daily basis. But that does not mean I am thrilled about it. I simply don’t love it.

Some changes I can totally get behind, though.

The recent time change is one of those things. I am a big fan of that! No, I don’t love that it is dark at 5 o’clock in the afternoon, but I DO love that it is beautifully bright and shiny at 6:50 a.m. when I am driving my daughter to school! It really does something for me.

I also love to see my kids grow and change.

Jacob, nearly 18 and a home school senior this year, went to a PARTY this weekend. If you’ve been around here for any time at all, you know that Jacob has Asperger’s Syndrome, which is part of the autism spectrum, and he is not a super social guy. So, to say that he went to a party, well, that is saying a mouthful! He has come so far.

Four years ago, due to his severe sound sensitivity, there is no way he would have gone to that party.

No way, y’all. 

But my Jacob of today, my child who has worked so hard to grow into the young man he is now, decided he would go. So, I dropped him off there. And when the Hub and I arrived to pick him up, he was standing around the bonfire with about six other teenagers. Laughing. Talking. You know, doing regular teenager-y things.

As we walked up, one of the girls saw us and said, “Oh, no, you don’t have to go now, do you, Jacob?” <secret mother smile here> We did not leave right away and as we stood around, we watched one of the girls tossing marshmallows in the air for Jacob to catch. We watched one of the other boys jam a crazy number of marshmallows in his mouth just to see how many he could get in there, while all the other kids were egging him on and cracking up. And while he’s doing that, in my mind, I’m trying to figure out how I would clear his airway when it got blocked with all those marshmallows. <Oh, so THIS is what typical teens act like? Okay, then.> Jacob had a great time.

Today, I got an email from Jacob’s doctor: the amazing woman, who is a child/adolescent psychiatrist, and one of the instruments God has used to help Jacob deal with his anxiety and sensory challenges. She was just checking in and wondering if we might schedule a yearly appointment with her. 

What? It’s been a year since we saw her? No, wait, it’s been more than a year, in fact. Things have changed that much. Things are going that well that we haven’t even thought about needing to go visit her.

In her email, she said this about Jacob: “I use his success as an example when I am talking to folks that have hearing sensitivity.”

Whoa.

Jacob’s story could possibly encourage another person who is suffering like he was? God-willing! Yes!

My heart is filled with so much gratitude. Thank You, Lord! Thank You for using this thing, which was so horrible for Jacob and for our family in those darkest of moments, to give hope and encouragement to someone else!

Thank God that He allowed us to find this doctor who was able to help us—not just Jacob, but our whole family.

I am so thankful that Jacob persevered and went to go do those hard and scary things so that he could get through them, and then each time he did go to Wal-mart, or a movie, or a restaurant, or the fair, or classes at the co-op without earplugs, it got progressively easier.

I am so thankful that, by the grace of God, I have been able to step away and let some of those hard and scary things happen. MAN, that is so, so hard! Just call me El Presidente…that is, Presidente of the Helicopter Moms Society! Yes, it was hard to take a (huge) step  back. But so worth it. And it gives me so much hope for the future for my son.

There was a time when I could never imagine that Jacob would be where he is today. Oh, I never lost hope and I believed it could be, but I could not imagine it.

And yet, here we are.

Yes, change is good. I can’t wait to see what is next.

 

“Man cannot discover new oceans unless he has the courage to lose sight of the shore.” -Andre Gide

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Filed under 30 Days of Thankfulness, Autism Days

Life moves pretty fast…

“Life moves pretty fast. If you don’t stop and look around once in a while, you could miss it.” ~Ferris Beuller

My blogging consistency has been suckish at best lately.  Why it has become so NOT the priority is a mystery.  Well, maybe not THAT much of a mystery.  I guess when things are not the greatest around here, I find it difficult, nay, impossible to fake it and make it all look nice and pretty here at the blog!  And I promised myself that the blog would not become a whine-fest.  So, that is why you haven’t heard from me lately.  As my mama used to say, “If you don’t have anything nice to say, then don’t say anything at all.”  Didn’t everybody’s mama say that??

But just to try and give you a non-whiney version of the past month’s events, here is the abbreviated version:

8th grade, puberty ridden, wonderful Asperger’s boy.  Suffering endlessly with his noise sensitivity.  Near middle-aged, waaay post puberty, slightly crazy mama.  Not knowing how to fix things.  10 days of Auditory Integration Training, with many prayers offered up begging God to use this to help my son.  It’s one of those “wait and see” deals.  Still praying.  God, are you tired of my begging yet?  Mix in there the need to make decisions about how we will now handle his high school education and the stress THAT induces.  (I’m pretty sure we’re home schooling.)  Additionally, an overwhelming sense of whirling around in circles going to softball games and practice, (Emma is playing for the first time ever and having a blast.) and an inability to feel like I am on top of any home chores AT ALL.  Hubby is uber stressed at his work and I am about convinced that everyone there is insane in the membrane except for him.  He is so fantastic and such a hard worker.  Why can’t they see that?

Blah blah blah.

Now, see?  Aren’t y’all glad I haven’t blogged for a month straight about that mess?

Moving on.

Yes, moving on.  Cause that’s what life does.  It just keeps moving right along and if you don’t keep moving with it, well, you get left in the dust, my friends.

Last night we had terrible thunderstorms here.  I woke up to this:

It’s supposed to look like this:

That’s what the left side of the garage looks like.  Keep in mind, I did not plant these jasmine vines.  They were here when we moved in.  I hate them passionately all year except for right NOW because their fabulous fragrant blooms make me close my eyes and smile and breathe deeply their scent when I walk past.  Otherwise, they are just a pain because they require a good bit of maintenance.

So, now add to my long list of things to do today to figure out some way to re-rig up my jasmine vine.  Errrrgh. I feel a trip to Lowe’s coming on.

Emma’s 11th birthday is tomorrow.  I have promised to make her a pound cake.  My grandma’s recipe.  THE best pound cake, EVER.  Rather labor intensive, but anything for my baby girl.  So add to my trip to Lowe’s a trip to the grocery store and probably a trip to my favorite store, Kohl’s, to find some little gifties for Em for her special day.  Slacker mama waits till the day before to shop.  OY.

So what am I still doing here??  I reckon I’m moving on…

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Filed under Autism Days, Day to Day, Emma, Jacob

Motown Madness

 

 

So I broke down and cleaned the carpet this week.  I mean, the in-laws are coming this weekend and all…otherwise I probably would have waited another six months.  It was pretty gross before I cleaned it and I’ve gotta say it doesn’t look much better post-cleaning.  What is up with that??  I would really like to have some wood floors throughout my whole house.  Carpet is evil.

Unless you live under a rock, you know that American Idol is in full swing.  I am a huge fan.  But, I didn’t get to watch last night…and it was MOTOWN night too!  OH, how I do love me some MOTOWN!!!   What’s a girl to do??  Search the world wide web, that’s what.  I was able to view the contestants’ performances on You Tube.  My faves for this season are…Allison, Danny and Adam…in that order.  For your viewing and listening pleasure, here is my favorite performance of the evening…

American Idol Season 8 Adam Lambert sings Tracks of My Tears

Granted Adam did that WAY bizarre over-the-top Ring of Fire rendition last week…it was just WEIRD…but this, THIS was pure genius.  Second favorite performance of the night was Allison’s Papa Was a Rolling Stone…WOW.  That girl has got some PIPES!  Holy COW! She blew the roof off!  Did I mention she’s only 16 years old??!

Allison Iraheta sings Papa Was a Rolling Stone AI season 8

Meanwhile, we have navigated through an interesting week around here.  Sensory issues abound.  Did y’all know that there are shiny happy people everywhere?  How DARE they laugh and enjoy themselves??  UGH.  Poor Jacob.  He spent all of last week at home…y’all recall the flu that visited us.  So, he had the week at home.  In the quiet house.  Didn’t wear his earplugs at all.  Only to return this Monday to the onslaught of 800 squealing, giddy, pubescent 6th, 7th and 8th graders.  It was not pretty.  We are in the process of trying to make some adjustments for him at school.  We are also trying to schedule a listening therapy called Auditory Integration Training (AIT) which has been successful for some people on the autism spectrum with noise sensitivities.  At this point, we are desperate to help him.  It hasn’t been easy for him to get back in the groove.  I guess the saving grace is that we have a 4 day school week…oh, the beauty of the teacher workday…so we’re easing back in.  We will get through the next two months and then we are making some major changes.  More on that later.  Haven’t got the whole plan formulated just yet.  I’ll keep y’all posted. 😉

And with that, I’m off to the Home Depot to find some twine to repair the trampoline net…again. 

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Filed under Autism Days, Day to Day